What Is The Typical Weight Of A 2 Year Old Bone Marrow Transplant – What the Media and Medical Profession Do Not Want You To Know!

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Bone Marrow Transplant – What the Media and Medical Profession Do Not Want You To Know!

After I was diagnosed in January 1989, the medical profession tried every means to use me as a guinea pig. I believe they do this because they know you are in shock and very vulnerable. At 29 and three young kids, I was absolutely in shock. The doctor who diagnosed me said I would be dead in 3 to 3 1/2 years. The fear was overwhelming and I now know that I cannot make a rational decision. I decided to postpone BMT and keep my options open.

Finally, at the age of 35, I decided to do BMT. My whole family has been tested and luckily I have two siblings who are a perfect match. BMT is not a surgical procedure, but a non-invasive but very intensive medical procedure. I started the procedure with nine others the same day they did. We had three days of what they called lethal chemotherapy, followed by four days of total body irradiation. The only way to describe what they did to you is that they kill you, and then they do their best to not only bring you back to life, but to keep you alive as much as possible afterwards.

Call me the lucky one, but the other nine BMT recipients started dying almost immediately, and by the end of the first year, we were down to three. Over the next six months, two other individuals succumbed to BMT. Leukemia will never be the cause of death once you have BMT. The number one cause of death after BMT is graft versus host. Graft vs host is where your new bone marrow sees all these foreign organs and objects in your body and tries to get rid of them. Remember, you have the donor’s bone marrow in your body, and the bone marrow treats your body like a complete foreign body. Doctors work hard to help the bone marrow adjust, but this is often a cause of failure. I’m not sure, but my guess is that the other nine died from graft-host fights.

After BMT, I was tested multiple times to see if I had GVHD, which I never had. I do happen to have and suffer from pretty much every other disease and disease, but I survived and am doing fine so far. Life was very different from what I expected. At 53, I still can’t hold a full-time job. What chemotherapy and radiation do to the body is something doctors are still figuring out.

A quick rundown of my experience – I’ve had 15 to 20 bouts of pneumonia each requiring an average of 2 weeks in the hospital. I contracted shingles over 10 years ago and still suffer from it from time to time. I have had cataract surgery on both eyes. A month or two after BMT, I was down to 114 lbs – at 6’2″ I had very little mass on me. Besides not having any hair, I’m a row of bones wrapped in skin, and I can barely walk. At my house, I had to climb the stairs to get to my bedroom because I couldn’t stand standing for long periods of time. I had double hernia surgery and a few other painful ailments that still seem to be there.

I still have problems with my weight so the doctor prescribed me a drug to increase my appetite so I can gain weight. It took me about 2 years to finally get to 150lbs, but today due to medication I’ve put on a lot, closer to 200lbs. This is about the perfect weight for my body.

My main problems to this day are severe fatigue and horrible digestive issues. But, at least I was alive and seeing all four of my kids grow up. I currently have 3 grandchildren and 2 grandchildren in the oven. Life isn’t necessarily good, but I know it can be worse.

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