What Would Cause Rapid Weight Gain In 6 Year Old What Happens to a Person Who Is Dying From Glioblastoma Multiform

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What Happens to a Person Who Is Dying From Glioblastoma Multiform

If you’ve recently found out that you, a family member, or a friend have been diagnosed with glioblastoma medium (gbm), chances are you’re wondering, “What will happen?” Of course, that’s just one of the many thoughts that cross your mind . how do i know Because I was with my brother when he was diagnosed.

He didn’t survive but was able to receive treatment that allowed him to live with his family for 6 years before dying of gbm.

We discovered the tumor after he had a grand mal seizure in 1994. He was home alone with his three children—6, 2½, and 1—when the tumor occurred. His 6-year-old ran to neighbors and told them something was wrong with her father. Tests at the hospital showed he had a tumor – that’s all we know. The doctors said we needed to make a “hatch” in my brother’s skull so they could remove the tumor – but be able to repeat the process often. Why are they repeating the process? Because removing the tumor meant removing a small portion of it at a time; then when it came back, the doctors would invade my brother’s brain again and remove more of the tumor.

Not happy with this!

As best as I could, I researched everything I could find – I reached out to medical contacts looking for the names of the best doctors near us. My brother and I traveled to New York City to see a neurologist on Park Avenue. Apparently, he’s known for his understanding of brain tumors. At the end of the visit, he advised my brother to get things sorted because he only had a few months to live. He told us that the tumor is cancerous and surgery won’t fix the problem.

A friend of my mother’s had a nephew who was a neurologist in Boston. We sent him my brother’s MRI, x-rays and test results. He immediately called and said a neurosurgeon in Boston could help my brother. We made an appointment to see the doctor. what’s the difference!

The doctor explained everything very clearly. He offers hope, but not the promise of a perfect life.

So what happened next?

My brother Kim was scheduled to have surgery; but first he had to undergo a series of MRIs (fast MRIs) to provide the doctor with information to create a 3D image of my brother’s brain so he could prepare for the surgery. Kim had to stay awake during the surgery so doctors could ask questions. Kim had to recognize pictures and words and answer questions throughout the procedure so doctors could determine if the tissue he was excising (removing) was too close to a functional area of ​​his brain.

He ended up shaving his entire head because the little bit of hair that was left looked out of place. The rest of his head has scars that his 2.5-year-old daughter described as looking like baseballs. (I’m sure she was referring to the stitches on the ball—Kim had similar stitches in her skull.) Risks of the procedure include:

  • Infection: The patient may have an infection or a deeper infection from exposure to a wound in the hospital
  • Bleeding: This could be a superficial bruise or a deeper collection of blood
  • Loss of smell or leakage of cerebrospinal fluid from the nose if doctors remove the tumor using the frontal approach
  • Damage to cranial nerves causing facial numbness, vision loss, or double vision
  • Needing a blood transfusion during or after surgery
  • Weakness, numbness, trouble speaking, or paralysis (stroke-like symptoms)
  • Epilepsy, may need medication (this happened to my brother)
  • Surgery may not cure the condition and further treatment may be required
  • coma or death

That was just the beginning — but that surgery cost King and his children another six years. In the meantime, he was receiving aggressive radiation therapy twice a week and chemotherapy through a combination of intravenous injections and drugs. He became very ill from the treatment (vomiting, nausea, exhaustion), but he continued to work. It’s not an easy task either. He’s the floor sander, lifting the 300-pound machine up a few flights of stairs. It was during a climb about three years after the amputation that he suffered an incredible headache—the worst he had ever experienced.

The local emergency room revealed he had a brain aneurysm – which is when a weakened area in an artery supplying blood to the brain swells. However, when one of the aneurysms ruptures, it can cause bleeding that can lead to further brain damage and even death. The doctor explained that the only reason my brother didn’t die from this bleeding was that the tumor resection had left a cavity or hole in his brain that allowed blood to pool. He further explained that one possible reason for the weakening of the arteries is radiation.

It took him months to heal from it. But when he recovered, he went back to work and raised his three children on his own. This is when things started to really go downhill for him. Doctors put him on high-dose steroids to reduce swelling and Depakote to prevent seizures.

These are some of the side effects he endured:

  • Insomnia
  • Increased appetite and potential for weight gain
  • Personality changes (from moody to psychotic)
  • Muscle loss (especially in the thighs, which bear the patient’s weight when standing, sitting, and walking)
  • Puffy appearance (distended abdomen, Cushing-like swelling of the face, and sometimes a hump in the neck)
  • Fluid in extremities
  • Possibility of Steroid-Induced Diabetes

unfortunately my brother done Being diabetic and getting insulin shots and blood sugar tests multiple times a day – it’s part of my job. He has always been a very athletic and active guy (for example, he would get up at 4:00am to pull lobster cans (200 cans) as a pre-work hobby; then he would sand and patch floors all day; after get off work he would ride his travel or mountain bike 20 to 30 miles; at the end, he cleans the house and takes care of his three kids). He really had a hard time starting to be sedentary and gained almost 100 pounds.

He’s functioning just fine — but he’s sluggish, has poor coordination, and his speech is slurred. He underwent MRIs every three months for the next two years, and then every six months for the next four years. In the fall of 2000, just a few months after a routine MRI came back normal, Kim’s speech got worse and he started getting headaches again. We went to the hospital and our hearts were broken by what they told us.

Not only did the tumor come back, but it was the worst kind of tumor – the fastest growing and inoperable. Tumors suddenly grew like fingers and spread across his brain.

Kim soon lost the ability to walk, talk, eat or use the toilet. At this moment, he lost all dignity. He had to be fed, diapered, and bedridden. He lived like this for about six months. He doesn’t want to give up his independence, he will try to walk but will fall to the floor. Before the cancer, he was 6’2″ and 160 lbs; after all the medication, therapy, and sedentary lifestyle, he was still 6’2″ and 260 lbs. Trying to pick him up was difficult—in fact, impossible. My parents, who are in their 70s, would figure out a way to pick him up – it took the three of us many nights to get him back to bed. It’s exhausting, but absolutely heartbreaking.

Kim lived in my house until his death. I’ll never forget the volunteers who came to my house just to sit with my brother – read, talk, or tell a story – anything that gave the family a short break from constant caregiving. Their willingness to serve keeps us from feeling alone and gives us the opportunity to go to the store without worry.

A hospice hospice came to monitor him. He has a hard time communicating. His breathing was labored, he was rarely awake, and he was in pain. Hospice staff injected him with morphine to relieve the pain, and a day later, on March 16, 2001, he stopped struggling to survive. He is 49 years old.

I hope this information can even help someone understand what a family dealing with a gbm diagnosis might be going through.

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